Welcome to the Queen Elizabeth Hospital Liver patients Support Group. The group and website’s role is to offer help and support to patients diagnosed with liver disease, and especially where the diagnosis may result in the patient needing a liver transplant. It is intended primarily for the patients of the Queen Elizabeth Hospital Birmingham. Other liver patients or their carers not associated with the hospital may find information that will be of interest to them. Certain sections of this website will be designated mainly for the use of the Queen Elizabeth patients only. The group is run entirely on a voluntary basis. We are a registered charity and all the money raised or donated is used entirely for the liver patients at the hospital. As the number of liver patients and transplants that are carried out each year is increasing, this makes our service even more invaluable to patients and their carers. The shortage of donors available puts an even bigger strain on the waiting times for a suitable liver to become available. The Queen Elizabeth liver unit has to date transplanted in excess of 4600 patients.
Patients and visitors coming into the hospital, for a quick look at the services and facilities available at the hospital, please see PATIENT INFORMATION button on the right hand menu.
Organ Donation Week 5th-11th September 2016. The liver Recipient Transplant Coordinators will be manning the stand on Wednesday 7th Sept in the Atrium of the new QE Hospital. Members from the Liver Support Group will also be in attendance, followed by a Thanksgiving service on Sunday by the Donor Family Network, see below.
PLEASE NOTE: Some of the items and services displayed in this website are purely for the benefit and help of liver patients and as such are NOT recommended or endorsed by the support group, they are merely intended as a guideline only (E&OE omitted) If there are any other items of information that you would like to see on the website, drop us a line and we will see if it can be included. The Liver Support Group is run in association with the Queen Elizabeth Hospital Liver Unit and has the full backing and support of both the Medical team and Co-ordinators.
DATA PROTECTION. As with normal data protection policy, patient confidentiality is of our utmost importance and is strictly adhered to, we will never disclose patient, staff or hospital information.
Maureen & John 2009 Transplant Games Gerry climbing Snowdon Su 2015 World Transplant Games
All the above are support group members that have undergone a life saving Liver Transplant, these are some of the remarkable achievements that can be done after a transplant. Sue’s impressive results at the 2015 World Transplant Games held in Argentina included 5 Gold medals and 2 Silver in her events. What a great success story.
If you would like to learn more about your liver and especially liver disease, also the complexity of the transplant process itself, there are two excellent Free courses on Future learn that are produced by the University of Birmingham. They are very educational courses to learn more in depth knowledge and information about your liver. Please click on Logo to go to the Future learn website. The courses are listed below, Liver Disease: Looking after Your Liver and Liver Transplants: the Ins and Outs
Trying to explain to younger children about your liver condition can be very difficult, and at times a challenge knowing what and how much to tell them. This booklet explains in pictures and words about the transplant process and what you are having to go through. This has been produced by the liver unit and the Birmingham Children’s Hospital. To download a copy, please click on logo to go to downloads page.
NHS services and Links to other support services
To go to the relevant websites simply click on logo’s below
Awards made to the Support Group in recognition of Patient Support
Finalist Best in care awards 2015 2011 Volunteers of the Year award
Tribute to Megan Kirby.
Megan was a founder member of the liver Support Group, right there at the very beginning, Sadly she passed away in October 2015. The services that she gave to the group, and the countless patients and families that she helped and counselled during that long time will be remembered by an enormous amount of people. The dedication that she gave was exemplary. She will be sadly missed by all the medical team and the group. Megan had been transplanted over 20 years and was not a contributing factor in her death, even after all that time her liver was still in excellent condition!.
The website is owned and operated by Alan Hyde : Visitor Coordinator of the Liver Support Group. All running costs associated with the website are kindly donated by Alan Hyde.
New website April 2016