Welcome to the Queen Elizabeth Hospital Liver patients Support Group. The group and website’s role is to offer help and support to patients diagnosed with liver disease, and especially where the diagnosis may result in the patient needing a liver transplant. It is intended primarily for the patients of the Queen Elizabeth Hospital Birmingham. Other liver patients or their carers not associated with the hospital may find information that will be of interest to them. Certain sections of this website will be designated mainly for the use of the Queen Elizabeth patients only. The group is run entirely on a voluntary basis. We are a registered charity and all the money raised or donated is used entirely for the liver patients at the hospital. As the number of liver patients and transplants that are carried out each year is increasing, this makes our service even more invaluable to patients and their carers. The shortage of donors available puts an even bigger strain on the waiting times for a suitable liver to become available. The Queen Elizabeth Hospital live unit has to date transplanted in excess of 5000 patients.
Patients and visitors coming into the hospital, for a quick look at the services and facilities available at the hospital, please see PATIENT INFORMATION button on the right hand menu.
PLEASE NOTE: Some of the items and services displayed on this website ane mainly for the benefit and help of the liver patients at the QE Hospital. Any services or advertisements that are displayed on the website are for information only and are therefore NOT recommended or endorsed by the support group, they are merely intended as a guideline only (E & OE omitted) . If there are any other items of information that you would like to see on the website, drop us a line and we will see if it can be included. The liver support group is run in association with the Queen Elizabeth Hospital liver unit and has the full backing and support of both the medical team and Co-ordinators.
DATA PROTECTION. As with normal data protection policy, patient confidentiality is of our utmost importance and is strictly adhered to, we will never disclose patient, staff or hospital information.
Donor Family Network – Thanksgiving Service 2018
The service is being held on 9th Sept 2018 -2pm at Alrewas National Memorial Arboretum
Thursday 2nd August to Sunday 5th August 2018.
For more information please see http://www.britishtransplantgames.co.uk/
Maureen & John 2009 Transplant Games Gerry climbing Snowdon Su 2015 World Transplant Games
All the above are support group members that have undergone a life saving Liver Transplant, these are some of the remarkable achievements that can be done after a transplant. Sue’s impressive results at the 2015 World Transplant Games held in Argentina included 5 Gold medals and 2 Silver in her events. What a great success story.
If you would like to learn more about your liver and especially liver disease, also the complexity of the transplant process itself, there are two excellent Free courses on Future learn that are produced by the University of Birmingham. They are very educational courses to learn more in depth knowledge and information about your liver. Please click on Logo to go to the Future learn website. The courses are listed below, Liver Disease: Looking after Your Liver and Liver Transplants: the Ins and Outs
Trying to explain to younger children about your liver condition can be very difficult, and at times a challenge knowing what and how much to tell them. This booklet explains in pictures and words about the transplant process and what you are having to go through. This has been produced by the liver unit and the Birmingham Children’s Hospital. To download a copy, please click on logo to go to downloads page.
Some of our earlier transplanted patients may well remember a ward sister named Sally Painting on the liver ward, Sally Painting was seven when she was diagnosed with liver disease. During her teenage years her life was saved three times. Inspired by those who cared for her, she became the first person in the UK to become a nurse after receiving a liver transplant. Over ten golden years, Sally became a role model for other transplant patients, caring for them at Birmingham’s Queen Elizabeth Hospital and winning a swimming gold at the World Transplant Games in 1999. Sally’s special life was captured in her diaries. This is her story. The book can be obtained ref. Product details ; Paperback: 292 pages. Publisher: Mereo Books (6 April 2015. ISBN-10: 1861514182.ISBN-13: 978-1861514189.
Travelling by bus or train to Queen Elizabeth Hospital from New Street Station, for downloadable map please click on bus icon. Service operated by National West Midlands buses.
Pre existing medical conditions. To download a copy of insurance companies that specialise in pre existing medical conditions, and helpful information provided by the group, please click HERE. The support group does not have any association with the companies listed, they are provided purely as a guide.
Travelling abroad with your medications. Useful guidelines. Click HERE to download a copy.
NHS services and Links to other support services
To go to the relevant websites simply click on logo’s below
Get Involved with Research – click link above for more details
Awards made to the Support Group in recognition of Patient Support
Finalist Best in care awards 2015 2011 Volunteers of the Year award
Donor Family Network Memorial for Donor & Recipient families at National Memorial Arboretum at Alrewas Staffordshire. Website http://www.thenma.org.uk/
Tribute to Megan & John Kirby.
Megan & John were founder member of the liver Support Group, right there at the very beginning, Sadly Megan passed away in October 2015 and later John in July 2017. The services that they both gave to the group, and the countless patients and families that they helped and counselled during that long time will be remembered by an enormous amount of people. The dedication that they gave was exemplary. Megan & John will be sadly missed by all the medical team and the group. Megan had been transplanted over 20 years and John was her carer. Megan’s transplant was not a contributing factor in her death, even after all that time her liver was still in excellent condition!. RIP
Many of you will remember John also , Megan & John were the support group in the early days, later taking on other patients to help run the support group. Both of them have left a lasting legacy behind them.
They will both be remembered with fond affection and never be forgotten. RIP
The website is owned and operated by Alan Hyde : Secretary & Visitor Coordinator of the Liver Support Group. All operational costs associated with the website are kindly donated by Alan Hyde.
New website April 2016
The facebook page is run externally from the support group by the wife of a transplanted patient from the QE hospital.